Kienbock Disease Survey Results
The following information was compiled from
424 surveys filed out by patients with Kienbock Disease.
The survey and current results can be found at the
Kienbock Information Center: http://www.kienbock.com/
For further information contact: Angela Shilling info@kienbock.com
Age when Symptoms were First Noticed:
|
Age |
Male |
Female |
N/A |
Totals |
|
Under 15 |
8 |
8 |
||
|
15 |
11 |
11 |
||
|
16 |
6 |
10 |
16 |
|
|
17 |
3 |
8 |
11 |
|
|
18 |
3 |
5 |
8 |
|
|
19 |
5 |
4 |
9 |
|
|
20 |
3 |
7 |
10 |
|
|
21 |
2 |
4 |
6 |
|
|
22 |
6 |
9 |
15 |
|
|
23 |
6 |
10 |
16 |
|
|
24 |
5 |
14 |
19 |
|
|
25 |
4 |
6 |
10 |
|
|
26 |
5 |
4 |
9 |
|
|
27 |
2 |
9 |
11 |
|
|
28 |
5 |
9 |
14 |
|
|
29 |
6 |
11 |
17 |
|
|
30 |
4 |
12 |
16 |
|
|
31 |
2 |
10 |
12 |
|
|
32 |
6 |
3 |
9 |
|
|
33 |
5 |
14 |
1 |
20 |
|
34 |
8 |
7 |
15 |
|
|
35 |
3 |
11 |
14 |
|
|
36 |
6 |
7 |
13 |
|
|
37 |
3 |
10 |
13 |
|
|
38 |
4 |
5 |
9 |
|
|
39 |
2 |
7 |
9 |
|
|
40 |
4 |
10 |
14 |
|
|
41 |
3 |
3 |
||
|
42 |
3 |
5 |
1 |
9 |
|
43 |
3 |
6 |
9 |
|
|
44 |
5 |
6 |
11 |
|
|
45 |
4 |
4 |
8 |
|
|
46 |
1 |
4 |
5 |
|
|
47 |
4 |
4 |
||
|
48 |
4 |
3 |
7 |
|
|
49 |
4 |
2 |
6 |
|
|
50 |
2 |
4 |
6 |
|
|
51 |
1 |
1 |
||
|
52 |
3 |
3 |
||
|
53 |
3 |
3 |
||
|
54 |
1 |
4 |
5 |
|
|
55 |
1 |
1 |
||
|
56 |
2 |
2 |
||
|
57 |
1 |
1 |
||
|
58 |
1 |
1 |
||
|
59 |
||||
|
60 |
1 |
1 |
||
|
61 |
||||
|
62 |
2 |
2 |
||
|
TOTAL |
137 |
284 |
2 |
424 |
N/A = No Answer



Which hand is affected?
|
Left dominant |
25 |
|
Left non-dominant |
124 |
|
Right dominant |
201 |
|
Right non-dominant |
15 |
|
Bilateral |
58 |
|
No Answer |
1 |
What Stage?
|
Right Hand: |
Sage 1 |
Stage 2 |
Stage 3-A |
Stage 3-B |
Stage 4 |
|
Diagnosed |
66 |
76 |
48 |
32 |
31 |
|
Current |
51 |
49 |
39 |
47 |
42 |

|
Left Hand: |
Sage 1 |
Stage 2 |
Stage 3-A |
Stage 3-B |
Stage 4 |
|
Diagnosed |
59 |
36 |
32 |
27 |
26 |
|
Current |
42 |
28 |
31 |
22 |
37 |

What Treatments Have You Received? (Some patients selected more than one treatment.)
|
None |
71 |
|
Brace |
222 |
|
Casting |
128 |
|
Radial Shortening |
102 |
|
Revascularization |
21 |
|
Bone Graft |
39 |
|
STT |
7 |
|
PRC |
16 |
|
Fusion |
48 |
|
Silicon Implant |
14 |

Current Pain Level: 1=None, 10=Constant Unbearable Pain
|
1 to 2 |
83 |
|
3 to 4 |
99 |
|
5 to 6 |
93 |
|
7 to 8 |
117 |
|
9 to 10 |
44 |

Other Member of Family with Kienbock Disease:
|
Parent |
4 |
|
Other |
2 |
Current Occupation:
|
Administrative/Reception |
25 |
|
Clerical/Service Worker |
25 |
|
Consultant |
6 |
|
Food Service |
16 |
|
Tradesman/Laborer |
50 |
|
Management |
21 |
|
Professional/Technical |
69 |
|
Sales/Marketing |
19 |
|
Working from Home Office |
1 |
|
Homemaker |
52 |
|
Military |
8 |
|
Retired |
5 |
|
Self Employed |
14 |
|
Student |
27 |
|
Disabled |
18 |
|
Other |
55 |
|
Decline to Answer |
13 |
History of Wrist Trauma:
|
None |
222 |
|
Fall |
73 |
|
Sprain |
76 |
|
Break |
31 |
|
Other Trauma |
317 |

Other Bone and/or Muscle Problems:
|
Carpal Tunnel Symptoms |
78 |
|
Cerebral Palsy |
2 |
|
Reflex Sympathetic Dystrophy |
8 |
|
Syndrome (RSDS) |
|
|
Tendonitis |
74 |
|
Ulnar Loading |
5 |

Ethnic Background: (Some patients selected more than one race.)
|
African American |
10 |
|
Asian |
3 |
|
Dutch |
28 |
|
English |
143 |
|
French |
47 |
|
German |
121 |
|
Irish |
105 |
|
Italian |
31 |
|
Japanese |
1 |
|
Middle Eastern |
2 |
|
Native American |
40 |
|
Polish |
16 |
|
Swedish |
38 |
|
Other Not Listed |
86 |
|
Decline to Answer |
7 |
