Kienbock Disease Survey Results

The following information was compiled from
424 surveys filed out by patients with Kienbock Disease.
The survey and current results can be found at the
Kienbock Information Center: http://www.kienbock.com/
For further information contact: Angela Shilling info@kienbock.com

(Thanks goes to Warren Bowman for the great looking graphs!)

 

Age when Symptoms were First Noticed:

Age

Male

Female

N/A

Totals

Under 15

8

8

15

11

11

16

6

10

16

17

3

8

11

18

3

5

8

19

5

4

9

20

3

7

10

21

2

4

6

22

6

9

15

23

6

10

16

24

5

14

19

25

4

6

10

26

5

4

9

27

2

9

11

28

5

9

14

29

6

11

17

30

4

12

16

31

2

10

12

32

6

3

9

33

5

14

1

20

34

8

7

15

35

3

11

14

36

6

7

13

37

3

10

13

38

4

5

9

39

2

7

9

40

4

10

14

41

3

3

42

3

5

1

9

43

3

6

9

44

5

6

11

45

4

4

8

46

1

4

5

47

4

4

48

4

3

7

49

4

2

6

50

2

4

6

51

1

1

52

3

3

53

3

3

54

1

4

5

55

1

1

56

2

2

57

1

1

58

1

1

59

60

1

1

61

62

2

2

TOTAL

137

284

2

424

 N/A = No Answer

 

 

Which hand is affected?

Left dominant

25

Left non-dominant

124

Right dominant

201

Right non-dominant

15

Bilateral

58

No Answer

1

   

 

What Stage?

Right Hand:

Sage 1

Stage 2

Stage 3-A

Stage 3-B

Stage 4

Diagnosed

66

76

48

32

31

Current

51

49

39

47

42


Left Hand:

Sage 1

Stage 2

Stage 3-A

Stage 3-B

Stage 4

Diagnosed

59

36

32

27

26

Current

42

28

31

22

37

 

What Treatments Have You Received?

(Some patients selected more than one treatment.)

None

71

Brace

222

Casting

128

Radial Shortening

102

Revascularization

21

Bone Graft

39

STT

7

PRC

16

Fusion

48

Silicon Implant

14

 

Current Pain Level:

1=None, 10=Constant Unbearable Pain

1 to 2

83

3 to 4

99

5 to 6

93

7 to 8

117

9 to 10

44

 

Other Member of Family with Kienbock Disease:

Parent

4

Other

2

 

Current Occupation:

Administrative/Reception

25

Clerical/Service Worker

25

Consultant

6

Food Service

16

Tradesman/Laborer

50

Management

21

Professional/Technical

69

Sales/Marketing

19

Working from Home Office

1

Homemaker

52

Military

8

Retired

5

Self Employed

14

Student

27

Disabled

18

Other

55

Decline to Answer

13

 

History of Wrist Trauma:

None

222

Fall

73

Sprain

76

Break

31

Other Trauma

317

 

Other Bone and/or Muscle Problems:

Carpal Tunnel Symptoms

78

Cerebral Palsy

2

Reflex Sympathetic Dystrophy

8

Syndrome (RSDS)

Tendonitis

74

Ulnar Loading

5

 

Ethnic Background:

(Some patients selected more than one race.)

African American

10

Asian

3

Dutch

28

English

143

French

47

German

121

Irish

105

Italian

31

Japanese

1

Middle Eastern

2

Native American

40

Polish

16

Swedish

38

Other Not Listed

86

Decline to Answer

7

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